We involved an advisory panel at all stages of Spectrum 10K. The advisory panel is a group of individuals who offer their perspective and expertise as representative members of the autism community. Our panel meets together on a regular basis. The original advisory panel provided input prior to the study launch and the panel has been expanded to include members of the co-production group.
Our advisory panel consists of the following individuals:
Autistic adults
Parents of autistic children
Charity representatives
Clinical psychologists/psychiatrists and community paediatricians
The advisory panel has provided feedback on various aspects of the study, including the type of questions that we ask about wellbeing in autism, as well as looking carefully through many of our materials such as the participant information sheets and consent forms, logo design and animation videos.
We will continue this important collaboration with our advisory panel to:
Review the progress of the study
Prioritize research questions that are important to autistic people
Develop strategries for communicating the research outcomes and optimizing their impact